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Biography:

Durhane Wong-Rieger, Ph.D. serves internationally as Chair of the Board of the International Alliance of Patient Organizations and is the Co-Chair of the Health Technology Assessment International Patient/Citizen Involvement Interest Group and board member of DIA International. In Canada, she is President and CEO of the Institute for Optimizing Health Outcomes and also President & CEO of the Canadian Organization for Rare Disorders. She is founder and chair of the Consumer Advocare Network, a national network to promote patient engagement in healthcare policy and advocacy. She is a certified Health Coach and licensed T-Trainer with the Stanford-based Living A Healthy Life with Chronic Conditions. Dr. Wong-Rieger has conducted training, workshops, and evaluation for patient groups in Canada and internationally on all aspects of patient engagement and advocacy. She has served on numerous health policy advisory committees and panels, including Project Coordinator for the Policy Dialogues for the Commission on the Future of Healthcare in Canada and consultant to the Ontario Premier’s Advisory Board on Organ Donation. She is a member of the Advisory Board for the Canadian Institutes of Health Research Institute of Genetics. Dr. Wong-Rieger’s current research and publications include chronic disease self-management and health coaching, measuring quality of life, patient engagement in health technology assessment, and rare diseases/personalized medicines. From 1984 to 1999, Durhane was professor of psychology at the University of Windsor in Ontario, Canada. Durhane has a BA in psychology from Barnard College in New York City and an MA and PhD in social psychology from McGill University in Montreal.