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Innovative Patient Recruitment Solutions for Rare Disease Clinical Trials

Track:
Rare/Orphan Diseases

Day & Time:
June 19, 10:45AM - 12:15PM (Pacific Standard Time)

Session Number:
425

Room Number:
7A

Level:
Intermediate

Type:
Symposium

Title:
Innovative Patient Recruitment Solutions for Rare Disease Clinical Trials

Chair(s):
Neil Weisman
Executive Vice President and General Manager
Blue Chip Patient Recruitment, United States

Description:
Patient recruitment for rare disease trials is challenging by nature due to small patient populations. Recent innovations have offered clinical development teams exciting new ways to accelerate patient recruitment efforts. This symposium will present three such innovations, including clinical trial simulations, in-home clinical trial visits, and activating patient advocacy and grassroots organizations to contribute to clinical trial enrollment. Case studies and best practices will be presented for each of these strategies.

Learning Objective(s):
Describe innovative solutions to enhance patient recruitment efforts for rare disease trials, including clinical trial simulations, in-home clinical trial visits, and engagement of patient advocacy and grassroots organizations; Demonstrate best practices for maximizing each of these efforts; Present case studies where patient recruitment was enhanced as a result of these efforts.

Presentation(s) & Speaker(s):
Recruitment for Rare Diseases: Are You Maximizing Your Relationship with Your Patient Advocacy Group?
Neil Weisman
Executive Vice President and General Manager
Blue Chip Patient Recruitment, United States

Bolstering Development Programs in Rare Diseases: Simulating Clinical Trials with a Virtual Patient Population
Badri Rengarajan, MD
Consultant, United States

Helping the Rare Disease Patient Say Yes to Participation in Clinical Research
Nicki Norris, MBA
Chief Executive Officer
Symphony Clinical Research, United States