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Patient-Informed Clinical Trials: Cross-Sectional Survey on a Patient Powered Research Network

Time

Tue, Jun 17 7:15AM
T 44

Title

Patient-Informed Clinical Trials: Cross-Sectional Survey on a Patient Powered Research Network

Abstract Summary

In February 2014, 6,819 recently active patients on PatientsLikeMe were invited to complete a survey. Over two weeks, complete responses were obtained from 1,621 patients with MS, Parkinson’s, fibromyalgia, ALS, type 2 diabetes, epilepsy, rheumatoid arthritis, depression, and lupus.

Poster Presenter

Sally Okun
RN,
Vice President, Advocacy, Policy and Patient Safety,
PatientsLikeMe
United States