The DIA European Patient Fellowship programme, now in its ninth year, is a programme to promote the participation of representatives of patient organisations at the EuroMeeting.
Yves Juillet is the DIA Immediate-past President and Founder of the European Patient Fellowship Programme.
DIA has enthusiastically embraced patients and patient advocates as stakeholders, which is the aim of the Patient Fellowship programme introduced eight years ago at the EuroMeeting. The presence of patient representatives at these meetings is only the first step. They have already started to follow up attending by actively participating as session speakers and chairs, and as members of our planning committees for these programmes. The DIA Board of Directors, and Regional Advisory Councils for Europe and North America, now include patient representatives.
The patient programme is strongly supported by the European Rare Diseases Organisation (EURODIS), a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases in Europe and beyond.
Application process for EuroMeeting 2014 – 25-27 March 2014, ACV, Vienna, Austria
Open for application: August 2013
Application deadline: Friday, 8 November 2013
Notification of selected fellows: Week of 25 November 2013
DIA Europe fully supports up to 15 patient representatives, covering their complete travel and accommodation costs plus complimentary registration to the meeting and offers up to 15 additional patient representatives complimentary registration to the meeting.
Information on the Patient Fellowship
Each year a selection committee is chosen to review applications and select programme participants
2013 Participating Organisations
AICCA Italian GUCH Association
Alkaptonuria Society (AKU)
Alternating Hemiplegia of Childhood Association of Iceland (ACH)
ASHOKA Innovators for the Public
Associatia Copilul Meu-Inima Mea
Association Ectodermal Dysplasia
Association of those affected by Ovarian Cancer (ASACO)
Behcets Syndrome Society
Dutch Adrenal Society
European Federation of Allergy and Airways Diseases, Patients Associations
European Liver Patients' Association (ELPA)
European Multiple Sclerosis Platform
European Patients' Forum
Federation of Patients with Rare Diseases from Central and Eastern Europe & Russia
Foundation for Children with Spinal Muscular Atrophy
French Rett Syndrome
Greek Alliance of Rare Diseases
Hungarian Rett Syndrome
International Alliance of Patient Organisations (IAPO)
Malta Health Network
Netherlands Haemophilia Society
Netherlands Interstitial Cystitis Patients Organisation (ICP)
NVLE Patient organisation for lupus, scleroderma and mixed connective tissue disease (MCTD)
Parkinson Vereniging (Dutch Parkinson's disease Association)
Prader Willi Syndrome Hellas
Rare Diseases of Finland
Fabry International Network
Rett Syndrome Europe
RP Fighting Blindness
Romania Thalassaemia Association
Sarcoma Patients EuroNet e. V. (SPAEN)
SLE-LED -Lupus Network
Society for Mucopolysaccharide Diseases
Spanish Patients Association
Wilhelm Foundation Ds
World Federation for Incontinent Patients (WFIP)
Read the report on Student/Patient Activities at the EuroMeeting Amsterdam 2013
What Past Participants Have Said...
"Thanks to DIA Europe for giving me the opportunity to attend this very prestigious conference. I learned a lot from the sessions. I look forward to collaborating further with DIA."
"It was a great programme and was a wonderful opportunity to meet other patient representatives and discuss common issues of interest.”
"I haven’t experienced anything like this programme anywhere else in the world. Sure, patient representatives are invited to conferences but this is something very different and very unique.”
"I learned that it is very useful especially for patients in isolated regions to have an outline platform for discussion and exchange."