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Message from the Immediate-past President

Yves Juillet“DIA has enthusiastically embraced patients and patient advocates as stakeholders, which is the aim of our Patient Fellowship programme introduced eight years ago at the EuroMeeting. But their presence at these meetings is only the first step. They have already started to follow up attending by actively participating as session speakers and chairs, and as members of our planning committees for these programmes. The DIA Board of Directors, and Regional Advisory Councils for Europe and North America, now include patient representatives and we look forward to this trend advancing into our other regions.” 

Yves Juillet, DIA Immediate-past President and Founder of the Europe Patient Fellowship Programme

Patient Initiatives

Programme Background

The DIA European Patient Fellowship programme, now in its ninth year, is a programme to promote the participation of representatives of patient organisations at the EuroMeeting.

Yves Juillet is the DIA Immediate-past President and Founder of the European Patient Fellowship Programme.

DIA has enthusiastically embraced patients and patient advocates as stakeholders, which is the aim of the Patient Fellowship programme introduced eight years ago at the EuroMeeting. The presence of patient representatives at these meetings is only the first step. They have already started to follow up attending by actively participating as session speakers and chairs, and as members of our planning committees for these programmes. The DIA Board of Directors, and Regional Advisory Councils for Europe and North America, now include patient representatives.

The patient programme is strongly supported by the European Rare Diseases Organisation (EURODIS), a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases in Europe and beyond.

We are no longer accepting applications. Fellows have been selected and informed shortly.

DIA Europe fully supports up to 15 patient representatives, covering their complete travel and accommodation costs plus complimentary registration to the meeting and offers up to 15 additional patient representatives complimentary registration to the meeting.

pdfInstructions for Patient Posters


pdfEuroMeeting Information for Patients


We are no longer accepting applications.

2014 Participating Organisations
ADHD-Europe
Alstrom Syndrome UK
ANGELI NOONAN ONLUS
French Glycogen Storage Disease (AFG)
Bulgarian Society of Patients with Pulmonary Hypertension
Children With Spinal Muscular Atrophy (CSMA)
Dravet Syndrome Foundation Europe
Dutch Parkinson Association
Ehlers-Danlos Support UK
EUPATI
European AIDS Treatment Group (EATG)
European Brain Council
European Cancer Patient Coalition (ECPC)
European Multiple Sclerosis Platform (EMSP)
European Network for Research on Alternating Hemiplegia (ENRAH)
European Patients Forum
EURORDIS
French Glycogen Storage Disease (AFG)
Helping cancer patients in Bosnia and Herzegovina
Hôpital Avicenne Aphp/Rett Syndrome Europe
Hungarian Haemophilia Society
International Alliance of Patients' Organization (IAPO)
LAVORARE ONLUS Italian Hospital Volunteering for Rare Disorders
Motor Neurone Disease Association
MPN-Netzwerk e.V, Germany
Myeloma Euronet Romania
Österreichische Kinder-Krebs-Hilfe
PEMBE HANIM NGO 
Pembeye Ve Hayata (to pink and to life)
Rett Syndrom Deutschland,
Spanish Federation of Rare Diseases (FEDER)
Tesoreria ANGELI NOONAN ONLUS
To Pink and To Life
Ukrainain Union of Patients Organizations (UUPO)
Untited Kingdom Thalassaemia Society


pdfRead the report on Student/Patient Activities at the EuroMeeting Amsterdam 2013



What Past Participants Have Said...

"Thanks to DIA Europe for giving me the opportunity to attend this very prestigious conference. I learned a lot from the sessions. I look forward to collaborating further with DIA." 

"It was a great programme and was a wonderful opportunity to meet other patient representatives and discuss common issues of interest.” 

"I haven’t experienced anything like this programme anywhere else in the world. Sure, patient representatives are invited to conferences but this is something very different and very unique.” 

"I learned that it is very useful especially for patients in isolated regions to have an outline platform for discussion and exchange."