Bill Corr to Kick Off Conference 30 Years After Passage of Orphan Drug Act
Bill Corr, deputy secretary of the U.S. Department of Health and Human Services, will deliver the keynote address at the third annual U.S. Conference on Rare Diseases and Orphan Products in Bethesda, Md., on Oct. 7, 2013.
Corr was vital in the passage of the Orphan Drug Act (ODA), serving as counsel to the U.S. House of Representatives’ Subcommittee on Health and the Environment during the ODA hearings in 1983. In his leadership role at the U.S. Department of Health and Human Services, he is responsible for the operations of the largest civilian department in the federal government that is dedicated to protecting the health of all Americans.
“With this year marking the 30th anniversary of the Orphan Drug Act, we are honored to have someone of Deputy Secretary Corr’s stature and historical import deliver the keynote address,” said Susan Cantrell, director of DIA North America. “His unique perspective on how far we’ve come in the development of orphan products, and where we need to go, will set the tone for collaboration across disciplines to advance rare disease care.”
The conference is co-sponsored by the National Organization for Rare Disorders (NORD) and DIA in collaboration with the Food and Drug Administration and EURORDIS
(Rare Diseases Europe).
The conference will take place Oct. 7 to 9 at the Bethesda North Marriott Hotel & Conference Center, featuring plenary and group sessions focusing on topics such as the investment outlook, legislative updates and scientific advances.
A limited number of scholarships will be available to representatives of qualifying patient organizations that wish to participate in the conference. This scholarship program is supported by a grant from the Medtronic Foundation. NORD and DIA will conduct a complimentary pre-conference workshop for patient representatives on Oct. 6. Click here
to learn how patient organizations can participate.
Click here for more information on the U.S. Conference on Rare Diseases and Orphan Products.
NORD is a nonprofit organization established in 1983 by rare-disease patient organization leaders to represent all Americans affected by rare diseases. NORD provides programs of advocacy, education, research and patient/family services. It works closely with approximately 200 member organizations representing people with specific rare diseases. NORD has offices in Boston; Danbury, Conn.; and Washington, D.C. Learn more about NORD at www.rarediseases.org. Follow NORD on LinkedIn, Twitter, YouTube and Facebook.
DIA is a neutral, global, professional and member-driven association of nearly 18,000 professionals involved in the discovery, development and life cycle management of pharmaceuticals, biotechnology, medical devices and related health care products. Through our international educational offerings and myriad networking opportunities, DIA provides a global forum for knowledge exchange that fosters the innovation of products, technologies and services to improve health and well-being worldwide. Headquarters are in Horsham, Pa., USA, with offices in Basel, Switzerland; Tokyo, Japan; Mumbai, India; Beijing, China; Washington, D.C.; and Latin America. Visit our website at www.diahome.org and follow DIA at: LinkedIn, Twitter, YouTube, Facebook, Flickr and Pinterest.
Eric Rosen | +1.215.290.9153 | Eric.Rosen@diahome.org
Mary Dunkle | 203.744.0100 ext. 217 | Mdunkle@rarediseases.org