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Clinical Trial Endpoints: Methods and Practice in Developing Measurements

Millions Suffer from a Rare Disease

October 22-24, 2012 | Washington DC
Capital Hilton Hotel

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GO About the Conference

This is the annual meeting where stakeholders - patients, patient organizations, researchers, drug and device companies, investors, thought leaders and government – meet to focus on rare diseases and orphan product research, development and access.

Register today
 
Contact Us at +1.215.442.6100You may register online or download a registration form. For registration questions, please contact CustomerService@DIAHome.org or at +1.888.257.6457.

Rare Diseases and Orphan Products


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Program - Now Available

 

 

GO Partners

Thank you to our Co-Sponsor
 
NORD 
 

Thank you to our Collaborators
 FDA
 NIH
Eurodis
 
   Duke
 
 

GO Patient Organizations & Patients

DIA and NORD invite Patient Organizations and Patients to attend the US Conference on Rare Diseases and Orphan Products to network with other stakeholders in the Rare Diseases Community.

At the 2011 US Conference on Rare Diseases and Orphan Products, 60 individuals represented Patient Organizations and Patients and 10 Patient Organizations representatives served as Speakers.

  • View 10 Patient Organizations representatives who participated as speakers
  • View 60 Patient Organizations represented

GO Registration Fees

Patient Organizations & Patients are invited to attend the US Conference on Rare Diseases and Orphan Products at a reduced registration fee of $400.

Submit a registration form by fax to +1.215.442.6199.

Registration Questions? Contact CustomerService@DIAHome.org or +1.888.257.6457.


 

GO Tabletop Exhibits

The US Conference on Rare Diseases & Orphan Products offers interested companies the opportunity to exhibit with a tabletop display.

Tabletop Exhibit Dates: October 22-24, 2012

GO Related Event


Clinical Trial Endpoints: Methods and Practice in Developing Measurements

October 25, 2012 | 8:30 AM – 5:00 PM
(This is a post-conference workshop to the Rare Diseases Conference)

University of California, Washington Center (UCDC)
1608 Rhode Island Avenue Northwest Washington, DC 20036

A hands-on, participatory workshop that will provide a detailed examination of the process for developing, validating, and implementing patient-focused clinical trial outcome measures that will meet regulatory requirements for products approval and labeling.

Target Audience. This workshop is for all industry, academia, and government professionals, both clinicians and non-clinicians, engaged in the development of therapeutic products for all diseases and conditions, especially rare diseases and others for which patient- focused outcomes define appropriate study endpoints.


Register for US Conference on Rare Diseases & Orphan Products and Clinical Trial Endpoints: Methods and Practice in Developing Measurements – and Save $200.**
 

Already registered for one of these events? Contact Customer Service

*Offer only applicable to the Industry rate.
**You must register for both events at the same time.

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