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      • DIA

        Booth(s):
        5  

        Contact Information:
        Contact Person: Courtney Ingram
        800 Enterprise Rd Ste 200
        Horsham PA 19044, United States
        Phone: +1.215.442.6100
        Fax: +1.215.442.6199
        Courtney.Ingram@diahome.org
        www.diahome.org




        Summary:
        DIA provides professionals at all levels and across all disciplines within the pharmaceutical, biotechnology, and medical device industries with access to knowledge resources and professional development opportunities to advance therapeutic innovation.
      • Exemplar Genetics

        Booth(s):
        9  

        Contact Information:
        Contact Person: Ken Wheeler
        PO Box 198
        Sioux Center IA 51250, United States
        Phone: +1.712.722.2767
        Fax: +1.712.722.2126
        ken.wheeler@exemplargenetics.com
        www.exemplargenetics.com




        Summary:
        Exemplar Genetics is committed to enabling an improved understanding of life threatening diseases and facilitating the discovery of life changing therapies in an effort to reduce human suffering. We create genetic engineered animal models (pigs) to represent human disease, which have realized breakthroughs for several rare and orphan diseases.
      • Lysosomal Storage Disorders Research and Treatment Center, Inc

        Booth(s):
        6  

        Contact Information:
        Contact Person: Dr. Oral Alpan
        11212 Waples Mill Road, Suite 100
        Fairfax VA 22030, United States
        Phone: +1.571.308.1900
        Fax: +1.571.308.1919
        zalpan@aol.com





        Summary:
        The company is involved in educational, outreach activities related to lysosomal storage as well as rare disorders. The company works with other non-profit patient advocacy groups to meet this need.
      • MetLife Center for Special Needs Planning

        Booth(s):
        3  

        Contact Information:
        Contact Person: Kelly Piacenti
        300 Davidson Ave, Area 1G
        Somerset NJ 08873, United States
        Phone: +1.732.893.3284
        Fax: +1.908.655.3820
        kpiacenti@metlife.com
        www.metlife.com/specialneeds




        Summary:
        The MetLife Center for Special Needs Planning is dedicated to helping families secure lifetime care and quality of life for their dependents with special needs. The Center's mission is to help families plan for the future of their dependents, including preserving government benefits and providing insurance and other financial solutions which can help provide life time quality care.
      • National Organization for Rare Disorders (NORD)

        Booth(s):
        4  

        Contact Information:
        Contact Person: Mary Dunkle
        55 Kenosia Avenue
        Danbury CT 06810, United States
        Phone: +1.203.744.0100
        Fax: +1.203.798.2291
        orphan@rarediseases.org
        www.rarediseases.org




        Summary:
        NORD is the leading nonprofit patient advocacy organization representing the 30 million Americans with rare diseases. It provides advocacy, education, support for research, and patient assistance programs. Established in 1983, NORD works with all stakeholders in the rare disease community.
      • Pfizer Inc.

        Booth(s):
        1  

        Contact Information:
        Contact Person: Asif N. Khan
        13558 Snowdrift Ct.
        Sterling Heights MI 48313, United States
        Phone:
        Fax: n/a
        Asif.N.Khan@pfizer.com
        www.pfizer.com




        Summary:
        Pfizer is committed to applying science and our global resources to improve health and well-being at every stage of life. We strive to provide access to safe, effective and affordable medicines and related health care services to the people who need them.
      • SmithSolve Communications Consulting

        Booth(s):
        10  

        Contact Information:
        Contact Person: Chris Smith
        3175 Route 10 East, Suite 400
        Denville NJ 07834, United States
        Phone: +1.973.442.1555
        Fax: +1.973.442.1550
        info@smithsolve.com
        www.smithsolve.com




        Summary:
        SmithSolve provides communication and patient advocacy services to healthcare companies. We help our clients build strong relationships with physicians, patients, advocates, media, policy makers and investors. We bring rare disease communities together.
      • Target Health Inc.

        Booth(s):
        8  

        Contact Information:
        Contact Person: Warren Pearlson
        261 Madison Avenue
        New York NY 10016, United States
        Phone: +1.212.681.2100
        Fax: +1.212.681.2105
        wpearlson@targethealth.com
        www.targethealth.com




        Summary:
        Target Health, (www.targethealth.com) is a full service eCRO with full-time staff dedicated to all aspects of drug and device development with particular expertise and interest in strategic development of drugs with unmet medical needs and Orphan Drug Designation. Pfizer just licensed a drug for Gaucher Disease which we took from pre-IND to NDA in 5.5 years. The drug was recently approved by the FDA.
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