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Engaging Patients through Digital and Social Media Communities

Track:
Clinical Operations

Day & Time:
June 16, 11:00AM - 12:30PM (Pacific Standard Time)

Session Number:
123

Room Number:
2

Level:
Intermediate

Type:
Forum

Title:
Engaging Patients through Digital and Social Media Communities

Chair(s):
Brian Loew
Chief Executive Officer
Inspire, United States

Description:
Patients now have unprecedented access to medical information, creating new challenges and opportunities for researchers. In this forum, we will discuss strategies and tactics to leverage social and digital media in clinical research and review guidelines which ensure that research integrity is not compromised by social and digital media community members. The patient perspective on how social networks are used for research and support will also be addressed.

Learning Objective(s):
Describe how people use social networks for purposes of identifying clinical research for themselves and for loved ones; Discuss key safety and ethics issues for researchers when interacting with patients in a digital support community; Explain the ePatient perspective about clinical trials.

Presentation(s) & Speaker(s):
Strategies and Tactics to Leverage Social and Digital Media in Clinical Research
Brian Loew
Chief Executive Officer
Inspire, United States

Preserving Patient Safety and Research Integrity
Kenneth A. Getz, MBA
Director of Sponsored Research; Chairman, CISCRP
Tufts Center For the Study of Drug Development, United States

Engaging Patients Through Digital and Social Communities
Aaron Fleishman
Strategic Consultation and Advocacy Outreach
BBK Worldwide, United States