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International Cooperation in Rare Disease Research

Track:
Rare/Orphan Diseases

Day & Time:
June 18, 8:00AM - 9:30AM (Pacific Standard Time)

Session Number:
324

Room Number:
32AB

Level:
Intermediate

Type:
Forum

Title:
International Cooperation in Rare Disease Research

Chair(s):
Paul Lasko, PhD
Chair, Executive Committee
International Rare Diseases Research Consortium, Canada

Description:
This forum will address the role of the International Rare Diseases Research Consortium (IRDiRC) in fostering international collaboration in rare disease research and discuss recent progress toward identifying rare disease genes and developing new therapeutics. We will also examine a proposed cooperation network in Asia Pacific in orphan drug clinical trials.

Learning Objective(s):
Define the role of the International Rare Diseases Research Consortium (IRDiRC) in fostering international collaboration in rare disease research; Describe recent progress toward identifying rare disease genes and developing new therapeutics; Identify opportunities for interested organizations to join IRDiRC.

Presentation(s) & Speaker(s):
Panelist
Paul Lasko, PhD
Chair, Executive Committee
International Rare Diseases Research Consortium, Canada

Facilitate the Accessibility via Asia-Pacific Collaboration Network of Clinical Trials for Orphan Drugs
Chih-Hwa Wallace Lin, PhD
Researcher and Acting Director, Biotechnology Unit
Board of Science and Technology, Executive Yuan, ROC, Taiwan

EMA Perspective
Jordi Llinares Garcia, MD, PhD
Head of Product Development Scientific Support Department
European Medicines Agency, European Union, United Kingdom